Nadir

My oncologist used the word “Nadir” to describe the point I’m at right now, which sounds more poetic, and a bit more scary, when said with a Czech accent.  Hell, LIFE is better when said with a Czech accent…

The process I’m going through is very similar to what we experience when Gerry had his Stem Cell Transplant in 2007.  For a period of time, his body was built up with blood transfusions, antibiotics, platelets, and then he was left to let all of that goodness pump him up.

THEN they came back at him with an extremely high dose chemo, although his infusions were just over 3 days.  They basically took a baseball bat to his immune system, trying to keep him as strong and as pain-free as possible during the chemo

My own chemo took place over 5 days, 1 day off/ 1 day on, so it waa 3 full days of the chemo, but divided up to make it a bit easier to deal with.

In my case, it wasn’t until about 5 days after my last chemo, or Day 10, that I began to feel REALLY terrible.  Days 7-9 were pretty low, but Day 10 was hellish.  I’ve been unable to eat simply because I cannot stand to smell food, so I’ve been getting my calories from the Kirkland protein milkshakes, which seems to be working well.  I can keep them down, and they fill me up enough that I don’t wake up hungry.

Recently I’ve been adding cut up apples a few times a day, which is so comforting.  I love Apples.  I can also keep them by my bed, cut up and ready to eat, to snack on when I wake up.

Today’s experiment is a roast beef sandwich that Andy’s bringing.  I’m hoping the smell is not too strong, and that I can get a good bit of the sandwich down!

I could use the energy boost of a good roast beef sandwich; I’m SERIOUSLY exhausted (but better than I was yesterday.) The exhaustion is very, very difficult to deal with.  The Physical Therapy folks would like me to get up and walk around a bit each day, and that’s a valid goal, but the energy involved in managing a walker and my IV pole can be absolutely nuts.  I took a short walk yesterday, and was proud of myself, but once I got back to the room I crawled into bed and did NOT move from position I landed in for over 6 hours.  Just me, clutching the covers, waiting for a bit more energy.

Monday I’ll be getting a Bone Marrow Biopsy in the OR so they can sedate me (I’m nothing but trouble…) and I am crossing my fingers that whatever positive numbers they’re looking for in my marrow will be bright and shiny and perfect!

The goal we’re working toward is a Bone Marrow Transplant, which is what Gerry had, although I haven’t talked about it at length with any of the oncologists.  They — wisely — adopt a ‘wait and see’ attitude so we’re not putting the cart before the horse.

Well, speaking of horses, my lunch is here and I’m ready to strap on the feed bag.  Wish me luck as I attempt to have a roast beef sandwich!  Thank goodness for Andy!!

 

Three Lovely Guests

It feels as though I’ve been in UM Hospital for a week, but it’s only been 4 days.  They’re exceptional here, and I may be most impressed with my physical therapist.  He knows how to get me to do good, steady work, and is steady with his praise.  Today he said I’d shown so much improvement since yesterday that if I do this well tomorrow I may get to walk to the gym and get on the bike!

Along wit that crazy news, I had three excellent visitors today!

LONDON

My friend London came by and brought me home made sugar cookies!  We had the loveliest chat, life and kids, and she made me feel almost normal!

London and I have been friends almost since the day I moved here, her daughter is Max’s age, and she and Todd have been very important in our lives!  I don’t see as much of them as I’d like, I miss seeing her more, but our friendship is strong and we’ve both enjoyed watching the changes in each other’s lives as we’ve grown over the years.

NATASHA

Then my exceptional Realtor, Natasha Cujedo, once again went above and beyond the call of duty; bringing me paperwork to complete and getting the contract to sell all done and dusted.  The house is being staged even as I write, it’s looking lovely, and I think we’re well on the way to getting it ON THE MARKET very soon!

We’re pricing it, oddly, at exactly what I paid for my new house.  So after $5,000 for fees and $3000 for the move, I’ll pretty much break even if it sells for asking price.  Cross your fingers.  It’s expensive to move, but this was vital, and I’m SO HAPPY that when I’m released from the hospital after my RECOVERY I’ll be returning to a new, accessible home!

Natasha has become more than an agent, she’s become a dear friend.  Her daughter goes (went?) to the same college Andy attended, we’re in the same place in our lives and have shared many experiences, good and bad, and she’s such a straight shooter.  If you need a real estate agent in the twin cities, I cannot recommend her more highly!

ROBIN

Robin has had what I’m beginning to think of as a “signature Annie year” – it’s been bad.  After falling and doing a terrible number on her shoulder, with a year of . pain, surgeries that didn’t work and immobility issues, she’s FINALLY had a surgery that’s working well, and she looked more rested and less in pain than I’ve seen her in a few years!

Unfortunately, the day she made her appointment for her surgery, it was discovered that her dear, dear husband, Jack, had a tumor in his colon.  He was in such bad shape that his hemoglobin was at 5.  After building him up a bit, he had surgery and is now undergoing 12 rounds of chemo. GO JACK!

Add to this the deaths of several dear aunts and Jack’s mom in hospice, and you have the portrait of a care giver who is at the point of being stretched too thin!  Thankfully, the cancer center where Jack’s getting his chemo is very close to their home, which makes everything easier.  Robin brought me yarn and needles, and I’m happily knitting up a Slippy Cowl to keep my fingers in the game.

I find myself wondering if this hospital allows dogs to visit.  I’m thinking probably not (I’m in a sterile ward) but I would give so much to see dear Jasper and get some puppy love!  My three wonderful guests were a great substitute, though, and I’m grateful they braved the U of M parking garage to come and see me!  Note: If you do come, there’s valet parking here, and I think they validate at the nurse’s station!!