None of us will beat death, it will get us in the end. I’ve become much more at peace with that truth over the last few years. I’ve lost so many folks who are close to me, maybe that’s why I have such a strong desire to see a grandchild. Or maybe it’s just that I love babies.
The quarantine has been easier for me than most folks I know. I can’t really get out and do much, I’m relegated to my bed, or my recliner, for all of the time each day that I’m not moving from room to room. With so many folks in a similar situation (stuck at home) I feel less alone in my recovery, it’s as if the whole world is recovering with me.
But I have a big decision to make. Should I get a Bone Marrow Transplant (BMT). Gerry had one in 2007, and they’re NOT FUN. It would mean going back into the hospital for at least 30 days, and right now the best doner that we’ve found so far is Max! There are millions of doners in the registry, though, so they’re searching to see if there might be a better match.
One of the really nice things about U of M Med Center is the update they give me every few days of my condition. It’s so helpful to see how my caregivers are viewing me, and I see hints in there as to what they’re hoping to accomplish in the near and far future.
It feels as though I’ve been in UM Hospital for a week, but it’s only been 4 days. They’re exceptional here, and I may be most impressed with my physical therapist. He knows how to get me to do good, steady work, and is steady with his praise. Today he said I’d shown so much…
Every three months I’ve been going in for my checkup with my oncologist, every 6 months I get a pet scan to make sure the Lymphoma’s not returning. So far, so good – until today. The numbers were a bit wacky, so I have to go back on Thursday for some more decisive tests. I’m expecting all to be well, it’s really the only way to focus my mind and not go a bit crazy waiting for test results.
We’re buckling down because a ‘once-in-a-decade’ storm is supposed to be coming, although at this point it’s six hours late (and it will probably be angrier for waiting…) One friend is writing, his wife is making Swedish pancakes and the kids are organizing a board game for later in the day.
As seldom as I seem to be blogging these days, you may not hear from me again until after Thanksgiving, so I hope you all have an exceptional holiday with loving friends and/or family and snugly animals to pet and love! And thank you all for sticking with me during this really rough year. It’s been hard, and I’ve had a good amount of loss, but I have SO MUCH to be thankful for – and I am!
It’s been a very emotional week for me, not least because my doc has had me cut back on my Oxycontin to half of my previous dose, although I also have 5mg Oxycondone I can take for breakthrough pain. I’ve done this step-down twice already since ending chemo, and I agree that it’s necessary to…
Today I’m going to make some cookies. I’ve entered myself into the Minnesota State Fair under the Decorated Cookie category (this year’s theme: Minnesota Flowers) and I’m raring to go!
I’m planning on making up a bunch of royal icing using meringue powder (so it will keep, in an airtight container, for up to a month) and I will practice a few different types of flowers and decorating techniques in the two months before I have to turn in my cookies.