So imagine my joy when, on Friday, Ellyn confessed to me that she’d booked a flight out to St. Paul and would be staying the weekend!! She also booked into an Air BnB, but – luckily – her host contacted her on Sat morning to tell her that she’d have to cancel the reservation, so Ellyn was free to stay here, in Max’s room!
It’s been SUCH a lovely weekend. A lovely, silly, boring, wonderful weekend! I’m not able to do much, and this weekend my exhaustion and nausea levels were pretty high, but Ellyn was cool with just SITTING on the sofa and watching cooking shows while we giggled and ate ice cream with Baileys.
I’m not an oncologist, and I’m not reading as much about this cancer as I probably should. I know many folks facing an illness like this prepare themselves with education, that was Gerry’s way of dealing with Multiple Myeloma. But I am lazier than that, and I know that my comprehension of the disease will probably have no material impact on what my doctors choose to do. I’d rather spend that time reading a novel, knitting or watching some cooking show. Or baking.
So this weekend I’ll get myself square away, packed up, ready to head down to Mayo. Andy’s booked into Days Inn (next to Methodist) and then later in the week she’ll move to the Staybridge Suites (a better choice for us when I’m released from Methodistl, but need to stay down in Rochester.)
Aside from my appointment today, and some yarn wringing out that I’m going to wrangle Andy into doing for me, today is a REST day. No walking, no trips, nothing but sitting on my butt, knitting, watching some TV and RESTING.
With two doctor visits and the support group, I was absolutely SHATTERED with exhaustion yesterday, today is Resting Wednesday.
Pain is such a game changer. It feels good to discuss it, but I also know how boring it must be to open my blog and read, “Pain, blah, blah, blah, PAIN!”
But that’s my reality today. Which is so weird after a few weeks of very good pain control. It also makes me wonder if the chemo pump drugs I’m on are having some kind of effect on my pain meds, perhaps undercutting them in some way..?
Tomorrow I’ll go back to the pump room to get more drugg-age to be pumped into my body and into my soul. All night long.
Tomorrow I’m ALSO going for some kind of special big-time Xray at St. Paul Radiology so they can get a very good look of how my Spine tumor has dealt with the death ray we like to call “Radiation Therapy”
We just keep looking for the exhaust port in this Tumor so my tiny little Luke Skywalker can send some radiation torpedoes down it. Tomorrow we see how successful those X-wings have been.
The diagnosis of my cancer was PDQ (pretty damn quick), coming immediately after they’d finished my MRI on July 23rd. At the time I was a bit nonplussed when the ER doc, after one test, made a pretty conclusive initial diagnosis; “Well, you DON’T have Fibromyalgia, you’ve got CANCER.” After a bit of discussion I…