Tag Archives: shingles

Even Keel

A good friend who I don’t speak with NEARLY often enough messaged me with sympathy today on our run of bad luck. I answered her:

“I think all of the shit is just now sinking in. When the worst happened (the car, my computer) we were just scrambling to get Andy to college. Now that a week’s gone by (and I’m in even MORE shingles pain) everything seems much darker. It will pass, we know it will. Now to shop for a used car…”

LIFE

We’re just keeping an even keel, trying not to let the two week crap storm hang over our heads, trying to be pro-active and forward looking. It’s helpful that it’s almost September, a time of new beginnings, because it feels like a good time to turn a page.

And, seriously, what we’ve lost is just STUFF.  Yes, some very big and expensive stuff, but it’s stuff. The kids are great, Gerry’s here, and I’m fine (just in pain, but so is Gerry ALL the time, and misery loves company!)

COMPUTER

I am fortunate to have a computer immediately available (I adore my wonderful, brilliant husband who drags computers home like stray cats and fixes them up!), and Carbonite is paying for itself (although the recovery is taking FOR EVER – but I can see that it’s happening – so I’m lucky!)  I don’t think I’ll lose many files, and every few months I backup on my hard drive in the basement, so nothing important is lost.  It’s just in limbo right now until I get the recovery re-installed.

Having said that, functioning this week is very difficult because I’m used to my email being setup as I like it (with all of my many folders and past emails arranged just ‘so’) and I want my browser like it used to be (with my shortcuts and bookmarks)  

I need to wait for the recovery to finish to see if I’m able to recover those small preference things that make such a difference to a semi geek like me.  I’m hopeful.

HEALTH

The shingles pain continues. I actually went to see a GI doc today because I was convinced that SOMETHING terrible is going on, but apparently the nerve pain from shingles can masquerade as some severe internal issues. So this awful pain continues.

The doc prescribed Lyrica. When I went to pick it up (after the Dentist, doing all of my errands on my bike because – no car!) the pharmacist said the insurance company wouldn’t fill it until I tried Gabapentine, which I couldn’t have because I didn’t have a prescription for it.

I explained I’d used Gabapentine for Fibromyalgia 4 years ago, and it really didn’t do anything for me. The upshot was nothing could be done, so I’m back to OTC pain meds. My GP prescribed a narcotic (a strain of hydrocodone) but I really hate taking it as it upsets my stomach.

Funny, you never see Nurse Jackie chugging Milk of Magnesia because all that hydro’s given her rock hard constipation.

So this is me moaning about my health again.  Someone said that once about me on a blog, and it’s stuck with me. I laugh about it some days, and other days I feel like a real whiner.

But the truth is, this pain is real and hurts like h@ll.  Maybe someone can benefit from my story (get the vaccine!) and maybe I can benefit from some words of wisdom!

The most helpful things I’ve heard so far are:

  • Epsom Salt Baths; I’m not a huge ‘bather’, but the Epsom Salts are one of the few things that really take the pain away.  I’m going to take a nice, long bath before I see my acupuncturist tomorrow. THANK YOU DEBORAH R!
  • Ice Packs: They really, really help with the pain. I have a tank top that I wear under a huge Tshirt, and I use safety pins to make little ‘pockets’ between the two garments where I can slip the packs so I don’t have to hold them in place.
  • Acetaminophen: It works. (Paracetamol for my UK friends…) Believe me, I WISH I could take the ‘fun drugs’ – but the pain of being backed up, the nausea, it’s just not worth it to me. So I’ve rediscovered the old family favorite, and it works.  I don’t take a lot, I discussed with the doc today, and I’m hopeful that in the next week the Lyraca will be approved by my insurance so I can see if THAT works better.
  • Movement Hurts: I know this sounds silly, but I tend to define a sickness on whether it is made better with movement, or made worse.  Fibro tends to get better if I can get out and bike, or do yoga, or stretch and swim. This shingle thing, on the other hand, just hurts more when I move.

I knew shingles was bad, and after Gerry’s stem cell transplant I was an eagle eye for any symptoms on him (and actually caught them once very early on, he got medication immediately and had no pain – yay!)

CAR

We’re still wrapping our heads around the car. At this point I don’t think it will be found, so it looks as though we’ll be in the market for a new (used) car. We liked the Hyndai, it had good sight lines, drove nicely, could fit a LOT inside and got decent gas milage. I know if Gerry had his druthers he’d get a VW, and if I ruled the world I’d get a Subaru, but the truth is, we’ll just be getting what we can afford.  Heaven help us. If anyone has a lead on a good, small, fuel efficient hatchback or station wagon in MN, let us know!

PHONE

I miss my phone quite a bit, mostly I miss the last few photos I took on it (pics of Andy which I hadn’t yet downloaded)  But it’s just a phone.  We bought it used (I jailbroke it) and this is when being cheap makes us happy. All of our phones, computers, ipads, etc., are bought as refurbs, used, or we do the refurbing/jailbreaking ourselves. So I’ll be looking for a new (used) iphone because I LOVE the interface, and until I get it I know I’ll feel a bit as though I’ve lost a finger.

In the mean time I have Max’s old cast of Samsung, with my sim card in it so I can make and receive calls.  But – and I’m serious – I cannot figure out how to use this thing.

I must have been VERY bad

In a past life I must have REALLY pissed off someone – or maybe in this life – because the pain I’ve had the last few days is crazy.  A sore back sent me to bed early on Tues, where the pain became SO bad at 3am that Gerry said we should go to the ER.

Test, test, test.

Test, test, test.

Apparently I had had a kidney stone. Different tests showed that there’d been one, and the fact they couldn’t see it on the scan led the doctor to say that I’d passed it. “The pain should go away now, just rest for a few days and make an appt to see your own GP.”

But the pain didn’t go away, it got worse.

And added to this pain was an incredible skin sensitivity (think of how your skin feels during a bad flu, then add poison ivy pain to that) and I had a lot to talk about with my doc on Thursday. As she was examining the part of my back that hurt the worst, in the general location of my right kidney, I half joked, “It couldn’t be shingles, could it?”

Yes, yes it could.

My constant companion

My constant companion

I’m on the watch for shingles all the time, but for Gerry, not for me. Because of his stem cell transplant and various drugs he’s on, he’s more susceptible to develop shingles. There has been at least one time when I caught the symptoms on him just in the nick of time (earning raised eyebrows and a smile from our oncologist) At the time it was taken care of with a quick course of Valtrex.

But these shingles had a bit of time to settle in, and they are intense.  Everything you’ve heard in those TV ads is true. I have so much pain that I’m nauseous.

The nausea makes it hard to keep the pain meds down. It’s a vicious circle, and I’m in the center of it.  I haven’t had this kind of out-of-control nausea since my first pregnancy.  I can’t wear anything but the loosest cotton dress, anything touching my body is cause for agony.

In other words, I’m not a good date.

In fact, if you asked me what was going on with my body (and if I hadn’t had a hysterectomy and wasn’t 52) I’d say, “Obviously I’m in labor!”

Since Tuesday. This sucks.

Work Continues…

Our newest design, Lanark Plaid Cowl, worked in Bulky Loch Ness, Thistle & A Wee Dram

Lanark Plaid Cowl, worked in Bulky Loch Ness, Thistle & A Wee Dram

The worst part is that I can’t get much work done. I finished up some schematics for my new book and got that out the door, and yesterday I wrote up a simple plaid pattern for a multi colored cowl (in our new Caledonian Colors) but my concentration is poor, and I can only knit for a few minutes before pain causes me to change my position into a non-knitting one.

Thursday evening we had to reshoot three sweaters for my upcoming book, and I KNEW that if we didn’t do it, it would be BIG TROUBLE. Andy goes off to college next Thursday, and I really needed to get front shots of 3 garments.

My photographer (Lara Need of Math4Knitters) is amazing, and she did most of the work. The models (Andy & our friend Lydia) were beautiful with great attitudes, so it was as stress free as a shoot could go.

I consider it a huge success that I was able to wait
until we got home to be sick. We all have different yardsticks.

I haven’t been able to ride my bike (the idea makes me break out in a cold sweat) and that makes the fibro pain grow in unwanted ways.

Well, what doesn’t kill us… right?

I find myself SO hesitant to write about this (I’ve actually been rather hesitant to blog at all these days…) because I know that someone will pop up to say, “Stop whining about your pain, just work through it!”

And they’d be right in a sense. The best thing to do with pain is to find a path through it, and sometimes talking about it isn’t the best path.

But the last 3 days have been overwhelming. I gave birth twice, to two big babies, the last one (11lbs) with no medication. This pain is worse. And it doesn’t seem to want to end.

Having said that, the pain does seem infinitesimally better since yesterday. I think the meds are working, but the nausea is as bad as ever.  But even that small change for good is reason to hope.

The cowl, down Jasper gets around

The cowl in it’s down position.
Jasper gets around

Your Reward

For reading my long tale of woe is that I’d like to gift you with the cowl pattern!

Lanark Plaid Cowl To download click on image of pattern.

Lanark Plaid Cowl
To download click on image of pattern.

Bear in mind, it’s been written by a woman in pain, and the tech edit was pretty quick and dirty. But the pattern is crazy simple [notice I didn’t say EASY, just SIMPLE] and if you want, you can consider it a fun test knit…

And (because I’m not in my right mind) I’ll pick ONE name from the comments of a person to receive a ball of ModeWerk Bulky. This is soft, beautiful yarn – it knits up like a dream – AND it’s super wash. I so hate making a gift for someone, then attaching a “care instructions” card to it.

Just leave a comment below, I don’t care what it’s about, and your name will go in the hopper for the drawing!  I don’t want to restrict this to US folks, so if you want to participate and you’re in a foreign country you’ll have to pony up $10 for shipping (I’ll cover the rest, and all of the shipping costs if the winner’s from the US) Leave your comment by midnight on Sun, Aug 17th (US Central Time) and we’ll pick a winner on Monday.  Good luck!

So go, leave a message, and make me laugh.  Please.