A lot of folks at TNNA asked about Gerry, and I figure it’s time for a short update.
Overall, things are very good. When we consider that 5 years ago we were told that he had 1-2 years, things are exceptional!
Gerry’s doing okay – he has good days and bad days. This spring he had a number of good days all strung together, which was wonderful!
This Summer’s been hard for him so far – me being away in Ohio for 2 weeks with Hannah was exceptionally hard for him – so we’re still recovering from that…
He was in what they called a ‘good partial remission’ because, evidently NO ONE goes into remission from this Multiple Myeloma.
As of a few months ago, though, he’s officially relapsed. Which was exactly what they told us would happen, but it’s happening 3-4 years later than they projected, so that’s very good.
As of his last visit at Mayo this past month his numbers were holding steady and even improved from the previous checkup (yay!)
If/when he does continue to decline, we have several strategies that the doctors are working on. The great thing about this cancer, Multiple Myeloma, is that EVERY day seems to bring new breakthroughs, and new ways of dealing with the disease. Gerry is living proof of that.
We have enough stem cells harvested (from 2007) to allow him to have two more stem cell transplants, but that’s far down the road, and a road that none of us want to go down (especially Gerry!)
It’s a miraculous procedure, but also incredibly hard, painful, and exhausting.
So that’s what’s up with Gerry!
Thanks for sharing your update. In my mind, the definition of remission is good counts on blood work and other tests for most blood cancers. These patients have to learn to live a new ‘normal’ life with the residual effects of previous treatments, be it chemo, be it radiation, be it stem cell transplant. And probably the case for most cancer patients, regardless of the cancer type. Every day is a new day and brings new challenges. I will keep Gerry in my prayers and also you and your other family members will be there as well.
(((Hugs))) to all of you. It’s wonderful to be able to treasure the good days, and I hope your family has MANY more to come.
Oh the sweetness of the picture of Gerry and Hannah!
Thanks for the update! I love reading your blog posts and Facebook updates.
Thank you for the update. You have a beautiful family, and I hope for health for you all.
Thank you for the update. Positive thoughts and prayers being sent. Sometimes I think it’s harder on the caregiver than the patient. I thank my husband often for all the things he has to do for me. I’m sure Gerry feels the same about you. God bless.
Annie, I’ve had you and Gerry on my mind for a few days. His blood work is holding steady and that’s good. I’m keeping you and yours in my thoughts and prayers.
I’m really glad to hear that. It sounds like he’s doing about as well as could possibly be hoped right now, and I hope the years to come bring lots of joy and lots of wonderful breakthroughs that’ll stretch those years to decades.
Keeping your family in my prayers.
Annie, you and your wonderful family embody the lovely spirit of living each day to the fullest. I’m sending thoughts and prayers of strength to all of you.
Thank you for the update … lately I’ve been wondering how he’s been doing. I hope he continues to do well, and better!
Annie, thinking of you and your family. Many good thoughts and positive vibes coming your way from here.
MaryEllen