Apparently that’s what I have.
We arrived at the Rheumatologists office this morning – Christmas Eve – and he dismissed Lyme immediately. He explained to us that my primary doctor had requested a Western Blot which was negative for Lyme.
I hadn’t known this, and my mind was so wrapped around getting a diagnosis of Lyme that he sort of took the wind out of my sails.
We talked for a bit, he’d my history for a few days, and my medical records from my primary doc. He did a pressure point test, pressing against my neck and arms and legs, much more painful than I would have expected. I guess that’s what he was looking for…
Because then he told me that, given my history and the test results, he felt I have Fybromyalgia.
I have a friend in NJ who was diagnosed with this back in the late 90’s, so I’m aware not only of the pain and exhaustion, but of the mental stress from folks who don’t believe it’s really an illness.
So now I have a diagnosis. And I’m sadder than I thought I would be. For the past few years I’ve been eating well, exercising regularly, just being all around generally very healthy, but I’ve been so exhausted all the time, too.
The doctor wants to start me on Trazodone to help me sleep. Lack of sleep, because of the pain, has been a bit of a problem. I’m supposed to start with a very small dose, so we’ll see how it does.
I had thought this pain and exhaustion I was feeling was just a reaction to Gerry’s illness, Jan’s death, etc., but I think deep down I knew that there was something wrong with a knitting teacher who wore out after 4 hours of teaching. And I had to admit that knitting more than an hour or so wiped me out, which should NOT be the case.
Sometimes I would feel so useless – I’d be in the middle of cooking something, or cleaning the house, and I’d have to stop and go lay down because I was so tired. I think that’s why I like bike riding so much – I can pedal, then I can coast…
These past 8 weeks have proven to me that there really has been something – something not good – going on with my body. And now it has a name. Fibromyalgia.
The doctor ordered some further blood tests to narrow down some of my other symptoms, so we headed over to St. Jo’s for to get blood drawn and then headed home.
I slept all afternoon.
But it’s still Christmas Eve!
The presents are wrapped and under the tree (right next to the Menorah) But I’m the most excited about a gift we got for Hannah.
Hannah astounded us this summer by keeping a hula hoop going for quite a long time at a friend’s house, and we’ve been looking for some solitary, fun, slightly kooky thing for her to enjoy in the winter. I showed her a hooping site and I think she’s hooked.
But hoops are pricey, so I wondered if there was a cheaper alternative…
I found this site by Jason Strauss where it explains how to make a hoop – hooray!
So Hannah – who is handy – will be getting all the components (tube, joiners, electrical tape) along with the instructions tomorrow morning when she wakes up, all tied up in a big, red bow. I hope she’s as psyched by it as I think she will be!