The difference in how I’m doing right now is nothing short of a minor medical miracle. Or maybe the miracle is my kid’s love, and all the good food and REAL rest that I’ve been getting at home!
Yesterday my doctor was pretty much astounded at how much better my hemoglobin and platelets are doing. HUZZAH! Aside from just being happy that I’m doing so much better than I was, the main reason for wanting my numbers to be so great is that I’m starting chemo again.
The last time I started chemo I was in dire straits. My numbers were horrible, I couldn’t keep ANY solid food down, but it was imperative that I began chemo so the docs went ahead and put me on a 1 week regime. It kicked my butt. Because I started with such poor numbers, and because the numbers just weren’t getting that much better while I was at the hospital (especially after Andy wasn’t allowed to visit and slip me a roast beef sandwich ever now and then) my numbers did go up, but they seemed to just stay at a certain point.
Fast forward to my first day coming home. It was a challenge to ride in the car without throwing up. We got home and it took both kids to get me up the stairs and into the kitchen. After a rest, Max practically carried me to my bed, where I stayed for days. I had to use the commode in my room for a week because I couldn’t make it to the bathroom.
This week I am up fixing my breakfasts and lunches (I can’t do dinners because I’m pretty worn out by then…). I walked up and down the block this week, and I baked a cake for the kids on Sunday. I pretty much did it all sitting down, but I baked it!!
It was in celebration of PAYING OFF THE MORTGAGE ON THIS HOUSE!! Actually, we had paid off the mortgage on our LAST house, so this was simply the point at which the check from selling that house finally cleared the mortgage company on our new house, but it means that except for utilities and taxes, we’re set every month. It makes the expenses of cancer much easier to bear. The joys of downsizing!!
We have a bit less storage space in the kitchen, so our solution is a baking cabinet. Every thing that has to do with baking goes into our new Ikea cabinet, standing against a bare wall in the kitchen. Max and I transferred pertinent items, freeing up more built in cabinet space.
This house is definitely smaller, but oddly, both kids have much larger living spaces. The trade off is we don’t have a dining room, but the kids and I find ourselves gravitating to the kitchen table and sitting and talking quite a bit, so it’s a happy trade off! We have SO MANY BOXES still to unpack, but that’s also the function of moving into a smaller house. Figuring out where to put stuff is a bit of a nightmare. I was in the hospital for the actual move, had I been home (and healthy) I could have directed that a bunch of stuff get tossed out. But now that it’s here, it must be dealt with!
But the BIG NEWS that I’m so excited about today is that last night I participated in my first online auction (by a local auction house, not ebay…) and I got myself an adult tricycle! It’s one of the brands I’d been looking at, and the price of the trike, put together and ready to ride (did I mention it’s brand new, never ridden?) is less than the price of buying the same bike ANYWHERE. And once I purchased it, I’d have to pay $100 assembly, but that’s taken care of!
Kathleen pointed the auction out to me, and also reminded me that WE HAVE A TRAILER for our biz that we can use to bring the trike to my house. I can’t pick it up until the full STAY AT HOME directive is lifted (which is set to be May 4) but it’s being stored locally, and it’s MINE!
Today I have my first in-home Physical Therapy session in an hour and ten minutes. I’m psyched, but I wish it were NOT raining because I’d like to show off my walking-with-a-walker distance tricks! Instead I’ll be showing the therapist that I can stand up, sit down, put dishes away and get around the house well. Stairs are still an issue, but slowly we’ll overcome that, too!
Signing off, future posts may be less positive as this second round of chemo takes hold of me, but we’re hoping that since I’m going into it so much healthier than before, the nadir will not be as low as with my first round of chemo.